Love and chaos collide when art meets disability in this raw father-daughter portrait.
A documentary examining the causes and effects of Joubert syndrome – a rare hereditary brain disorder, which affects both the motor and intellectual development of its sufferers.
Direction
Kötting and Lythgoe blur observer and participant beautifully messily.
Production
Super 8 home movies collide with clinical footage—intentionally jarring.
Director
Mark Lythgoe
Trivia, insights & behind the scenes
Kötting's entire filmography explores neurodivergence through his family; this launched a decades-long artistic collaboration with Eden.
The title's 'mapping' is deliberately ironic—Joubert syndrome defies clean categorization, and so does this film's structure.
US
